Take a lesson from me, don't do this to yourself. It takes a long time to recover from all the care giving if you don't take care of yourself first and foremost. They say, "You can't take care of someone else if you don't take care of yourself first" and how true it is!
Here's a few things I've learned in the past four years of being Mom's caretaker.
- I ought to stop trying to get Mom's approval. In my mind I'll never get it but if I sit back and think about it, I do have it now. Otherwise I wouldn't be the one Mom wants to take care of her. In her own weird way she has finally given me her approval and I should try to be comfortable with it.
- Being grateful for the time I am able to spend with Mom is another thing I need to keep in the forefront of my mind instead of thinking of all the things I could be doing if I weren't "stuck" here. I am deeply blessed to be able to be here for Mom, I wouldn't have it any other way. Anything else out there in the world can wait - Mom's needs are most important now that she is becoming more and more dependent upon me.
- If I stop and do my best to put myself in Mom's shoes, or should I say, In Mom's slippers , ha. I have a better attitude and get less frustrated when she doesn't answer me, or takes a long time to answer my questions about meals and such. She is very hard of hearing and when I think of what it must be like to have people get frustrated and a bit angry because of her hearing trouble, my heart softens and the frustration and impatience melts away. It makes me want to hug her and hold her - except Mom and I don't really do that - so I bake a batch of brownies instead to let her know how much I am thinking of her and love her. I know how that sounds - the association of food and love - but no one here is having weight problems because of that so no Jenny Craig referrals please. (grin)
- Mom just wants my company, whether she can hear me or not, whether we have anything to say to each other or not. She simply wants me to be here with her. I don't have to stand on my head to entertain her or tell her wonderful stories about my life outside the house (thank God! Because I have no life outside the house! ha) Mom wants me to watch Oprah with her every afternoon at three, and then Jeopardy and Wheel of Fortune every evening. It's really not much to ask anyone is it? (There's something about becoming convalescent that makes one enjoy Jeopardy and Wheel of Fortune so much, when one has never watched them before. I think it's a rule of old age or something, I don't know.) I don't think Mom can even hear what anyone is saying on the television. Still she sits there with her delicate hands folded in her lap with a slight smile on her face and her eyes riveted to the t.v. screen as if she's not missing a thing.
- Mom won't tell me when she has pain so I need to ask her everyday, at least once or twice a day to be sure she's comfortable. This woman has an incredibly high tolerance for pain and one little aspirin is all it takes to get rid of whatever is giving her trouble. The trouble lies in that the one little aspirin knocks her out - well, puts her to sleep so she usually asks me if I want her to go to sleep when I give her one for pain. I tell her, "No Mom, this is for your back pain" and she says, "Oh, I thought you wanted me to go to sleep" and I can hear the words she doesn't say, "to get me out of your way". Mom, you're never "in my way, you've not yet been a burden to me, you've never made anything difficult for me" I think to myself. (Why can't my Mom and I talk out loud to each other like this?
- I want to tell Mom I love her - with words coming out of my mouth, not just by showing her. This, along with the hugging, is something my mother and I have never been very comfortable with. I think I can count on one hand the times she's told me she loved me in those very words. Don't get me wrong, I know she loves me, she has shown me the greatest love a parent could show their child. We have a weird "love word" blockage from something in our past maybe. I just want to be able to say it to her so she can hear it and believe it before she dies. She's done so much for me all my life and I want her to know now that I am doing for her I do love her more than ever. It's going to have to come out without me thinking about it though. I almost said it but stopped myself and there was this big long silent moment following my words "I looo...v." a very awkward moment, indeed. I didn't know what to do, I just stood there with my mouth open and suddenly, thank God the phone rang and broke my silent panic. I'm not even sure she heard what I was about to say, I kind of stuttered it out and never finished it. That's not the way I want Mom to her me tell her that I love her. Not at all. This is something I need to make happen before she dies. I wouldn't be able to live with myself if she died not hearing those words from me. My heart would break for her.
- I need to get some support and encouragement from other family caregivers. There are a lot of books out there to buy and browse through that are very good in educating caregivers but there's nothing like simple talking to others who know what I'm going through. My second quest would be to find a support group for caregivers in my town or on the internet. (First quest being me telling Mom I love her)
Some caregiver books are featured below: